The culture of pediatric intensive care units (PICUs) is focused on curative or life-prolonging treatments for seriously ill children. We present empirically-based approaches to family-centered palliative care that can be applied in PICUs.
Palliative care in these settings is framed by larger issues related to the context of care in PICUs, the stressors experienced by families, and challenges to palliative care philosophy within this environment. Innovations from research on family-centered communication practices in adult ICU settings provide a framework for development of palliative care in PICUs and suggest avenues for social work support of critically ill children and their families.
State-of-the-art monitoring and life support systems for children with life-threatening conditions, including mechanical ventilation and hemodynamic support.
Integrating families into the care team with open communication, shared decision-making, and psychological support throughout the treatment journey.
Seamless integration of palliative care principles with curative treatments to address physical, emotional, and spiritual needs of patients and families.
Collaborative care involving pediatric intensivists, nurses, respiratory therapists, social workers, and child life specialists working together.
We know having a child in the PICU is incredibly stressful. Our support system helps families through these challenges.
Based on research from adult ICU settings, we've adapted family-centered communication practices specifically for pediatric critical care environments.